Jon Scheinman and his family are more loving and more energetic than any family I’ve met in a long time. They have kicked off a national effort called “Lemonade for Livy,” to raise funds which will go to the Epilepsy Foundation to support epilepsy research. How it all started Lemonade for Livy … Read More
I am pleased to introduce you to Living Well With Epilepsy’s new contributing writer, Emily-Sian Donoghue. You may remember her from a few of her personal stories.
Emily is a normal, optimistic, 21 year-old college student. The only thing holding her back is uncontrolled seizures. Now with the help of the RNS System she has a fighting chance at her dreams.
I have been seizure free for 14 months and feel that my epilepsy is not behind me but I should enjoy being seizure-free.
Now in their second year, the members of the NJ Task Force on Epilepsy continue to hold public hearings and to gather information. If you live in the state of New Jersey and are affected by epilepsy here are a few ways you can get involved.
I have learned through my own research that it can be tough to find examples of other people living with conditions similar to your own. When there are so many different things that can cause epilepsy, it can be overwhelming to weed through the information that doesn’t apply.
People with epilepsy have been dealing with stigma for centuries. This negativity has caused loss of jobs and relationships, hampered treatment, limited research funding, and has even brought about severe physical harm in some cases. In an effort to drive change, we will dedicate June to Epilepsy Stigma Awareness Month as we did last year.
My life is the same as any other Mom. I wake up in the morning to my kids in my bed snuggled in next to me. I wouldn’t have it any other way. The difference in my case, however, is that heavy stress and lack of sleep are seizure triggers for me.
