Strength and Resilience: Kailey and Alan’s Journey with Epilepsy
Kailey and her father Alan’s journey with epilepsy has been one of perseverance and hope, marked by years of searching for the right treatment.… Read more → Strength and Resilience: Kailey and Alan’s Journey with Epilepsy
Epilepsy Patient Advocacy and the RISE Clinical Trial
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Anne Neumann, RN, BSN, Rare Disease Marketing, Patient Advocacy and Engagement Lead at Biohaven, about her role and about RISE: A Clinical Trial For Epilepsy. Background on Ms. Neumann Anne brings over 25 years’ experience in healthcare, from … Read More
New Epilepsy Scholarship Program
Epilepsy Scholarship If you are planning to take classes at a 2 or 4 year university or college or toward a trade or certification program in the fall of 2025, and are living with epilepsy you may be eligible for this scholarship. The Charles L. Shor Epilepsy Opportunity Fund This scholarship … Read More
Recharge Your Batteries: Make Time for Joy
Dialectical Behavior Therapy (DBT) reminds us to recharge our emotional batteries and make time for joy. This can be especially important during the holidays.… Read More
National Epilepsy Awareness Month: Why Advocacy Matters
November is National Epilepsy Awareness Month—a time to amplify the voices of the 3.4 million Americans living with epilepsy. Advocacy is crucial, helping to dispel myths and foster understanding. … Read More
Real World Advice
on Living With Epilepsy
I’m Jessica Keenan Smith, Founder and CEO, of Living Well With Epilepsy and I’m living with epilepsy just like you. Welcome to this trusted online source for anyone impacted by epilepsy. I believe we can have more impact with better communication, so this resource works to bridge the gap between the scientific and patient communities. Get your free epilepsy guide today!
CURE Epilepsy Hosts Event to Kick Off Epilepsy Awareness Month
The CURE Epilepsy team has invited me to share info on a fundraising event they are hosting in NYC in honor of Epilepsy Awareness Month. This unique event will feature famous soprano Renée Fleming in conversation with a neurologist, a music therapist, and our immediate past board chair Kelly Cervantes about the … Read More
Interview with Biohaven Medical Director on RISE A Clinical Trial For Epilepsy
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Jason Lerner, MD, Medical Director Research and Development at Biohaven, a board-certified pediatric neurologist and epileptologist about his role and about RISE: A Clinical Trial For Epilepsy. Background on Dr. Lerner Before joining Biohaven in the spring of … Read More
How to Find a Neurologist for Epilepsy
When faced with the problem of how to find a neurologist for epilepsy, the challenge can feel daunting. So, I thought I’d share my process.… Read More
What is a seizure action plan?
A Seizure Action Plan is a personalized plan for people living with epilepsy. It tells others how to respond on your behalf during a seizure. … Read More
