Jon Scheinman and his family are more loving and more energetic than any family I’ve met in a long time. They have kicked off a national effort called “Lemonade for Livy,” to raise funds which will go to the Epilepsy Foundation to support epilepsy research.
How it all started
Lemonade for Livy started several years ago when friends of the Scheinman family had a lemonade stand to raise money to help with Livy’s medical costs. Livy was born with a brain malformation and began having seizures the day she was born. She later had a functional (partial) hemispherectomy, however she still experiences seizures on a daily basis. Livy also has Cerebral Palsy and is primarily non-verbal but clearly communicates to family and loved ones.
The family friends raised $90 with one lemonade stand.
That simple act of kindness got Livy’s twin sister, Hailey, thinking about how they could raise money and awareness with lemonade stands of their own. So last year, Hailey, who was 8 at the time, organized 10 lemonade stands (with a little help from mom and dad). According to Jon, “Hailey is Livy’s biggest supporter.”
Lemonade for Livy Weekend
This year the family has spread the word about Lemonade for Livy and is hoping to have a lemonade stand in all 50 states. They have dedicated the weekend of July 25-27 as the official Lemonade for Livy weekend. As mentioned above all money will be donated directly to the Epilepsy Foundation. In fact, the family is asking that checks be made out to the Epilepsy Foundation directly.
Hear from why Hailey thinks this is important
How to Participate
There are lots of ways to participate whether you are a kid or a grown-up. Here are a few ideas:
- Have a lemonade in your neighborhood
- Have a lemonade party
- Try a Lemonade book club
- Set up a lemonade stand at a sporting event or a yard sale
- Have a pool party
- Sell Baked goods
- Grown-ups might enjoy a Lemondrop party
Be sure to get recognition
Don’t forget to let Livy and Hailey know that you are having a stand or party. They will turn your state purple on the map and watch for pictures of your event. You can register your event here:REGISTER
How to submit donations
1. OnlineDONATE ONLINE
2. By Mail
Please make checks payable to the Epilepsy Foundation
Mail checks to:
PO Box 15326
Clearwater FL 33766
Attn: Lemonade for Livy
Mail money by:
Send checks by August 10
You can make a difference
Before Jon Scheinman and I ended our conversation he noted, “It is really important to bring people together. Something like this can bring some hope and bring people together in a way that is fun but has a real purpose.” I hope you consider having a lemonade stand July 25-27 to support Hailey and Livy and epilepsy research. Oh, and spread the word.
Founder and CEO
Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.