MyEpilepsy: New epilepsy app from the Cleveland Clinic
The Cleveland Clinic just released MyEpilepsy, a free iPad app to help people living with epilepsy work with their doctors to better manage the disorder.
The Trabasack: Making life with epilepsy easier
Duncan Edwards, Director of Equip-able, Ltd, his wife Clare, have a child with Dravet’s Syndrome. When their son was young, they worried he would injure himself in his stroller on the heavy plastic tray. So Clare, in looking for a functional lap tray that would also stay put on her wheelchair, ended up creating the first Trabasack on her sewing machine.
Featured Epilepsy Events
Are you looking to increase attendance at your annual epilepsy fundraising event? Or do you want to get the word out about a support group that is making a difference? Maybe you want to let people know about registration for an epilepsy camp. Don’t forget to add your event to the free Living Well With Epilepsy event calendar.
2014 Epilepsy Funding update: We’re not there yet
It’s time for the annual epilepsy funding update. Each year I take a look at the funding going toward Epilepsy research and compare it to funding toward other disease states.
Top Discoveries in Epilepsy in 2013
The end of the year is a great time for “Top” and “Best of ” lists. There’s one for everything including the top apps, top movies, top songs, top photos, and top blogs. I thought it was time to have a Top Discoveries in Epilepsy list. This was a particularly busy year … Read More
Epilepsy and AIDS: too much in common
This year marks the 20th anniversary of the movie Philadelphia, which was a turning point in the AIDS movement. In 1993, people were dying as a result of HIV and AIDS related causes in great numbers. Those infected were living with such severe stigma that people were afraid to tell loved ones, … Read More
Following a Ketogenic Diet Through the Holidays
Guest Post By Robyn Blackford, RD, LDN, the ketogenic dietitian at Ann & Robert H. Lurie Children’s Hospital of Chicago, IL While some parents allow their children the freedom to gorge on holiday meals and treats, some do not have that luxury. Children following the Ketogenic Diet (KD) for the treatment of … Read More
2014 is the year of Purple: Pantone’s Radiant Orchid
Each year, Pantone selects a color of the year. The company just announced the 2014 Color of the Year is PANTONE® 18-3224 Radiant Orchid. This beautiful purple hue presents a great opportunity for the epilepsy community. According to Leatrice Eiseman, executive director of the Pantone Color Institute®, “An invitation to innovation, Radiant … Read More