IMG_3837Jessica Keenan Smith

Founder and Managing Editor

The Backstory

Living Well With Epilepsy was created by Philadelphia area-based writer, Jessica Keenan Smith. As a woman living with epilepsy, Jessica brings a unique perspective to Living Well With Epilepsy, as she was diagnosed as a teen after having several grand mal seizures.

In 2009, after more than two decades of living with the stigma associated with epilepsy, she was ready to speak out. With limited resources, she created a simple blog using the lessons learned throughout her career in nonprofit marketing.

Initially, Jessica simply hoped to reach someone else dealing with similar side-effects, frustrations and struggles. Along the way, she discovered a world-wide community of readers in need of news and information on epilepsy.

Today

Since it’s humble beginnings, Living Well With Epilepsy has grown into a boutique media brand that is completely focused on epilepsy. This makes Living Well With Epilepsy a resource to the millions of people living with and caring for those living with epilepsy. That’s why healthcare marketing and pr, hospital systems, startups in the neuro space, and others interested in exciting new developments in epilepsy, all rely on us to get the word out through Living Well With Epilepsy and our social media channels.

Jessica brings more than 20 years experience in marketing and digital media to Living Well With Epilepsy. Download our media kit to view the many ways we are reaching out to the epilepsy community.
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Her Role

As Founder and Managing Editor of Living Well With Epilepsy, Jessica is responsible for strategy, content, business development and enhanced functionality on the site. She works directly with our writers, makes all final editorial decisions, drives business development and is continuously on the lookout for trends in health, online marketing, and epilepsy.

Speaking Engagements

In this role, Jessica also speaks regularly to the media and health organizations such as WHYY, Healtheo360, AbilityExpo, Living Well With A Disability Conference, Epilepsy Foundation, Wharton School and MASAE. Below are a few of the more commonly requested topics:

  • Epilepsy 101: Raising Awareness
  • Navigating Social Media
  • Maximizing Your Child’s Strength’s
  • Using Fundraising Fundamentals to Plan Your Membership Campaign
Hire Jessica to Present

Accomplishments

2017 Presented at University of Pennsylvania Epilepsy Support Group

2017 Presented at Sunovion All Company Meeting in Boston, MA

2017 Judged Web Health Awards

2017 Presented at National Epilepsy Walk in Washington, DC

2017 Attended ASENT Annual Meeting in Rockville, MD

2017 Joined the CDC AES Public Health Interest Workgroup

2016 Led Epilepsy Blog Event with Greg Grunberg at American Epilepsy Society

2016 Presented to Variety Charities National Meeting in Las Vegas, NV

2016 Ran three successful Epilepsy Blog Relays

2015 Guest on H360LIVE

2015 Guest on WHYY’s Voices in the Family

2015 Brought on three new writers

2015 Launched the first Epilepsy Blog Relay

2015 Judged the International Web Health Awards

2015 Presented at BIO International Convention

2015 Judged the eHealthcare Leadership Awards

2015 Attended the Academy of Neurology Annual Meeting

2014 Presented at Mid-Atlantic Society for Association Executives

2014 Presented at NYMetro AbilitiesExpo

2014 Brought on first writer for Living Well With Epilepsy

2014 Named About.com Epilepsy Expert

2013 Presented at Boston AbilitiesExpo

2013 Became American Neurological Association’s Director of Education and Member Services

2013 Presented at Living Well With a Disability in Lancaster, PA

2013 International Web Health Awards Judge

2013 Web Marketing Association Judge

2012 Re-Launch Party featuring Grammy-nominated artist Jann Klose

2012 Named a Wharton Management 100 Client Partner

2011 Shorty Award Nominee

2011 International Web Health Awards Judge

2010 Named Interim Director, Stewardship Wharton School

2010 Participated in University of Pennsylvania Stewardship Guidelines Committee

2009 Participated in University of Pennsylvania Campaign Recognition Committee

2009 Established Living Well With Epilepsy on Blogger

2008 Awarded Design and Design – Best of the Best for Wharton Stewardship Campaign

2006 Began work with the Wharton School at University of Pennsylvania