8 ways to support families affected by severe epilepsy
Mary Anne shares 8 tips for supporting families caring for a child affected by severe epilepsy. She gives a little insight into her own experience.… Read More
Epilepsy Blog Relay: Henry’s Fight with Dravet Syndrome
Henry at about 1 year old, started having seizures again but this time there was no fever. Our lives just changed forever. … Read More
The Trabasack: Making life with epilepsy easier
Duncan Edwards, Director of Equip-able, Ltd, his wife Clare, have a child with Dravet’s Syndrome. When their son was young, they worried he would injure himself in his stroller on the heavy plastic tray. So Clare, in looking for a functional lap tray that would also stay put on her wheelchair, ended up creating the first Trabasack on her sewing machine. … Read More
An inside look at Steve Wynn and Joey’s Song
Steve Wynn In March of 2010, Michael Gomoll lost his son suddenly to Dravet’s Syndrome, a rare form of epilepsy. Gomoll then established The Joseph Gomoll Foundation to honor his son, and began preparing for the release of the Joey’s Song project. One of the leading supporters in the Joey’s Song … Read More
Shining a spotlight on Dravet’s Syndrome
Our last post provided you with information on a project called Joey’s Song. The project was created after Joey Gomoll succumbed to Dravet (pronounced Dra-vay) syndrome. This rare form of epilepsy robbed Joey of most of the ability to speak, but it didn’t stop him from communicating with everyone he met … Read More
Joey’s Song: Musicians in support of epilepsy awareness
When Michael Gomoll lost his son Joseph Martin Gomoll suddenly in March of 2010 to Dravet’s Syndrome, a rare form of epilepsy, he decided to take action. Gomoll turned his pain into an opportunity for those living with epilepsy. He established The Joseph Gomoll Foundation to honor his son and since it’s inception, the … Read More