Bryan on Being a Father and Living Well With Epilepsy
Bryan had his first seizure at 16. He didn’t expect to “live well with epilepsy,” in fact, he hoped to live well in denial.… Read More
Henry’s Fight with Dravet Syndrome
This family discovered after additional seizures and a genetic report that their son, Henry, has Dravet Syndrome. That’s when the entire family’s life changed.… Read More
A Father’s Day Note to the Best Dad Ever
Happy Father’s Day to you Dave, and also to all the great dads like you who put their child with special needs first. You are all great dads.… Read More
Clair’s Story: Adjusting to life with seizures and to living seizure-free
Clair shares her story of becoming an adult with seizures and the adjustments she made to living seizure-free as well as perspectives she gained along the way.… Read More
Memory and Epilepsy: Through the haze of epilepsy medication
Every morning, I gulp a pill that transforms my past into historical fiction. The medication which manages my epilepsy, also devours my memory.… Read More
Women and Epilepsy: Pregnancy and the Ketogenic Diet
Women and Epilepsy: Becky shares her experience with epilepsy, pregnancy and the ketogenic diet.… Read More
International Epilepsy Day: from Ireland to Australia with refractory epilepsy
Maria Elizabeth invites us along on her twenty-one year journey with refractory epilepsy as she travels the world and completes her doctorate.… Read More
International Epilepsy Day: Discovering the impact of sharing one’s story
By sharing my story I discovered the social connections within the epilepsy community. Speaking about how I overcame the fear of uncertainty of having seizure was a different kind of exposure for me.… Read More