Sheri’s Story: Learning to Live All Over with Refractory Epilepsy
Sheri was diagnosed with refractory epilepsy in her late 20’s. She keeps a positive attitude, but transportation can be difficult.
Is it a seizure or a dream?
You know that dream where you realize you are naked or nearly naked in a public place… the one where you are barefoot walking down a long hallway in a large hotel with no idea why you are there? Here’s the thing, it happened to me and it was a seizure.
Life after an epilepsy diagnosis: Rafaela reminds us, we can be happy
Rafaela has shared her story to show that is possible to have an amazing life after an epilepsy diagnosis.
A Lifetime with epilepsy and a little help from VNS Therapy
Betty Gail’s Story My journey with epilepsy began at the very young age of 6 months old. I contracted meningitis, and needed brain surgery to remove fluid that had built up on my brain. Then at about the age of nine, the seizures started. My doctors always assumed that they came from … Read More
Life with epilepsy in high school
Jordan is 16 years old and a junior in high school and she’s had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy.
Epilepsy Blog Relay: Living with Tuberous Sclerosis
Rachel’s story My name is Rachel Skaug, formerly Rachel Kaalberg, and I had epileptic seizures as a child. My seizures started at four months old, which was in 1988, and lasted until I was 10 years old. I am from Madison, Wisconsin. Much of my testing happened at Mayo Clinic in Rochester, … Read More
On CDKL5: A story of a hard to recognize illness in kids
According to Randi, “When our daughter first had a seizure it was subtle, quick, and questionable.” Today, she shares a story of hard to recognize seizures.
Adjusting to an Epilepsy Diagnosis
Kristine shares her experience with adjusting to an Epilepsy Diagnosis. She describes her fears, denial and experience of feeling isolated.