Epilepsy Blog Relay: Avery’s Fight With Nonketotic Hyperglycinemia (NKH)
Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia).
Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia).
After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She’s now a year seizure free!
Despite fear and shame from stigma, this metabolic coach is ready to go public about her epilepsy diagnosis. Read how she found the strength to share her story.
Amber shares her story of brain surgery and brain tumor related epilepsy. She shares her struggle to find hope and create a life despite her challenges.
Karen on brain surgery for epilepsy: My life was going well, epilepsy didn’t stop me doing anything and I thought why take the chance?
After 38 years of secrecy, Alison is now shedding light on epilepsy by sharing information and being open about her condition.
With a traumatic childhood and multiple disabilities, Ken still fights for a better life and to help those around him.
Things are definitely still bumpy and new to me but I have found that the more educated I get and the more I indulge in the epilepsy community the better and more stable I feel. I have my own YouTube channel that until now didn’t feature much about my epilepsy but I’m not afraid to be a voice for others I have a passion to inspire! I know I looked and looked for youtube videos like the ones I make and am going to make for people just like me!