Pro Golfer Kenzie O’Connell On Taking Control of Her Epilepsy and Fighting for Zero Seizures
STEPS Toward Zero champion, Kenzie O’Connell, and epilepsy advocate, Landis Wiedner, share about their experiences living with and managing epilepsy
Epilepsy Blog Relay: I’m tired of fighting within the epilepsy community
Frankly I’m tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work.
Epilepsy Blog Relay: Epilepsy Stigma in Teens and Adults
We’ve taken a close look at epilepsy stigma and wanted to share the similarities and differences in how teens and adults respond to epilepsy stigma in real life
Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.
Epilepsy Blog Relay: 5 things Cancer taught me about Epilepsy
5 things my cancer diagnosis taught me about how to live better with epilepsy.
FDA offers new hope for families facing rare disease
FDA offers renewed hope for families facing rare disease with the launch of the Accelerating Rare disease Cures (ARC) Program
Epilepsy Blog Relay: Chantal writes a letter to epilepsy
Chantal has been battling epilepsy for 19 years with the help of VNS. She shares a recent letter to her epilepsy.
Epilepsy Blog Relay: On Accepting Epilepsy
Accepting epilepsy as a part of my everyday life only happened when I felt the slightest bit of control and ownership over this new obstacle.