Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.
Is it a seizure or a dream?
You know that dream where you realize you are naked or nearly naked in a public place… the one where you are barefoot walking down a long hallway in a large hotel with no idea why you are there? Here’s the thing, it happened to me and it was a seizure.
Epilepsy experience creates a whole new family of supporters
After Stephanie (known as Alyrical) was diagnosed with epilepsy the dynamic between her friends and family and loved ones changed. The road to being diagnosed with epilepsy was a difficult one that lead to major changes in her life affecting not only her health.
8 ways to support families affected by severe epilepsy
Mary Anne shares 8 tips for supporting families caring for a child affected by severe epilepsy. She gives a little insight into her own experience.
Epilepsy Blog Relay: Henry’s Fight with Dravet Syndrome
Henry at about 1 year old, started having seizures again but this time there was no fever. Our lives just changed forever.
Epilepsy Blog Relay: The temporal lobe epilepsy (TLE) experience
Nancy remembers how her temporal lobe epilepsy (TLE) seizures always began with a feeling of deja vu and a sensation of falling.
Epilepsy Blog Relay: Elaine uses poetry to cope with adversity and a life with TLE
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Elaine’s Story I was diagnosed with epilepsy at age four. At that time, early 1960s, one of the few medications available for epilepsy was phenobarbital. Concerned about negative side effects for … Read More
Epilepsy Blog Relay: Déjà Vu and temporal lobe epilepsy in real life
At 29, I began to experience mysterious episodes of déjà vu followed by nausea and exhaustion. It took doctors 5 yrs and a tonic clonic seizure to diagnose these episodes as epilepsy.