8 ways to support families affected by severe epilepsy
Mary Anne shares 8 tips for supporting families caring for a child affected by severe epilepsy. She gives a little insight into her own experience.
Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.
Epilepsy Blog Relay: Henry’s Fight with Dravet Syndrome
Henry at about 1 year old, started having seizures again but this time there was no fever. Our lives just changed forever.
Epilepsy Blog Relay: The temporal lobe epilepsy (TLE) experience
Nancy remembers how her temporal lobe epilepsy (TLE) seizures always began with a feeling of deja vu and a sensation of falling.
Epilepsy Blog Relay: Elaine uses poetry to cope with adversity and a life with TLE
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Elaine’s Story I was diagnosed … Read More
Epilepsy Blog Relay: Déjà Vu and temporal lobe epilepsy in real life
At 29, I began to experience mysterious episodes of déjà vu followed by nausea and exhaustion. It took doctors 5 yrs and a tonic clonic seizure to diagnose these episodes as epilepsy.
Epilepsy Blog Relay: My Grandmother and PCDH19 Epilepsy
Francesca’s Story: I have a type of epilepsy that was inherited from my mother’s mother. My grandmother was born with PCDH19 epilepsy.
Epilepsy Blog Relay: Andrea prepares for a tour with her band Motion Device
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Andrea’s story When people see … Read More