Anonymous Story: The good life despite epilepsy
My seizures have persisted through those 60 years at the rate of about 4 seizures per month. Still, I’ve had a pretty good life. … Read More
Cassie’s Story: Living with Juvenile Myoclonic Epilepsy
The journey since my diagnosis of Juvenile Myoclonic Epilepsy has made life precious in a way not everybody gets to experience. … Read More
2014 Epilepsy Funding update: We’re not there yet
It’s time for the annual epilepsy funding update. Each year I take a look at the funding going toward Epilepsy research and compare it to funding toward other disease states. … Read More
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind. … Read More
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.… Read More
Top Discoveries in Epilepsy in 2013
The end of the year is a great time for “Top” and “Best of ” lists. There’s one for everything including the top apps, top movies, top songs, top photos, and top blogs. I thought it was time to have a Top Discoveries in Epilepsy list. This was a particularly busy year … Read More
Epilepsy and AIDS: too much in common
This year marks the 20th anniversary of the movie Philadelphia, which was a turning point in the AIDS movement. In 1993, people were dying as a result of HIV and AIDS related causes in great numbers. Those infected were living with such severe stigma that people were afraid to tell loved ones, … Read More
Anonymous Story: It’s the not knowing that scares me
One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened???… Read More