Now in their second year, the members of the NJ Task Force on Epilepsy continue to hold public hearings and to gather information. If you live in the state of New Jersey and are affected by epilepsy here are a few ways you can get involved.… Read More
When I was in my 20’s I had 19 tonic clonic seizures in 1 hour. I wound up in a coma for two weeks and had to relearn to talk. This was not the first time I stared death in the face. This is my story.… Read More
I have learned through my own research that it can be tough to find examples of other people living with conditions similar to your own. When there are so many different things that can cause epilepsy, it can be overwhelming to weed through the information that doesn’t apply. … Read More
People with epilepsy have been dealing with stigma for centuries. This negativity has caused loss of jobs and relationships, hampered treatment, limited research funding, and has even brought about severe physical harm in some cases. In an effort to drive change, we will dedicate June to Epilepsy Stigma Awareness Month as we did last year.… Read More
My life is the same as any other Mom. I wake up in the morning to my kids in my bed snuggled in next to me. I wouldn’t have it any other way. The difference in my case, however, is that heavy stress and lack of sleep are seizure triggers for me. … Read More
Knee tendinitis, ankles that sprain easily … most marathon runners are nagged by a particular body part that is prone to injury. My nag is my head. I have epilepsy that, for whatever reason, tends to be provoked by running. I’ll be in the middle of a run, cruising along, feeling great, and – bam! – suddenly have a seizure. Bummer when you’re trying to set a personal record.… Read More
Jessica Keenan Smith, Founder and Managing Editor of Living Well With Epilepsy, a online resource for people living with epilepsy, has been selected to judge the 2014 Web Health Awards. This will be the fourth year running, Smith has been invited to judge this prestigious award.… Read More
Adjusting to university life was a bit of a struggle, as I tried to balance the stress of work and becoming more independent. The seizures still occurred from time to time.… Read More