Henry’s Fight with Dravet Syndrome
This family discovered after additional seizures and a genetic report that their son, Henry, has Dravet Syndrome. That’s when the entire family’s life changed.… Read More
Shining a spotlight on Dravet Syndrome
In honor of Dravet Syndrome Awareness Month its a great time to highlight this rare epilepsy syndrome that is difficult to diagnose and currently has no cure.… Read More
8 ways to support families affected by severe epilepsy
Mary Anne shares 8 tips for supporting families caring for a child affected by severe epilepsy. She gives a little insight into her own experience.… Read More
An inside look at Steve Wynn and Joey’s Song
Steve Wynn In March of 2010, Michael Gomoll lost his son suddenly to Dravet’s Syndrome, a rare form of epilepsy. Gomoll then established The Joseph Gomoll Foundation to honor his son, and began preparing for the release of the Joey’s Song project. One of the leading supporters in the Joey’s Song … Read More