Ask an Epileptic: “Do generic meds cause different side effects when they are from a different manufacturer?” DEAR EPILEPTIC: I have epilepsy and wonder if anyone who receives medication by mail ever receives their meds from a different generic manufacturer. This time my generic Lamictal came in a different shape and size. … Read More
Need some answers on what it’s like living with epilepsy? Why not ask an epileptic? Listening to NPR the other day, I heard the journalist Gustavo Arellano mention his nationally syndicated column, “¡Ask a Mexican!.” This is Arellano’s forum to answer any and all questions about America’s spiciest and largest minority (his … Read More
Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More
JD submitted this story of how juvenile onset myoclonic epilepsy has nearly killed him several times over. JD’s Story When I was 14 (1985) I began having bizarre, frightening experiences. In the mornings, while in the bathroom, I would suddenly find myself falling to the ground without any memory of how I … Read More
A guest post by Virginia Cunningham Every parent needs to do their part to make sure their children have high self-esteem, and this is particularly important for children who have issues that can easily affect their self-esteem, like epilepsy. Children diagnosed with epilepsy later in life may need extra encouragement, since they … Read More
Michael Z.’s story may sound familiar to many of you. I know it did to me. He has experienced many of the same things I have, from being diagnosed in his late teens, to “busting himself up” during a seizure, to having trouble with side effects. Read his story and think of … Read More
Several of you have submitted stories your personal experience with epilepsy stigma. Thank you to those of you who have submitted your stories so far. Keep them coming! Campaign Update Just a quick update on our goal of $500. To date we have raised $11. I know we can do better and … Read More
A talented young artist by the name of Ashley Shaffer created “Hope” the beautiful artwork you see here. Ashley has shared her art as part of our Epilepsy Stigma Awareness Month. Creating Hope Ashley was inspired to create this beautiful multi-media piece titled, “Hope” (2013) and has dedicated the piece to inspire … Read More