In this episode, What the EF podcast tackles an audience-requested topic: SUDEP. There are so many questions, and Dr. Kim Pargeon guides through all of them. Available on your favorite streaming service! YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible Stay in touch with What the EF by following us on … Read More
The Danny Did Foundation (DDF) has worked tirelessly since 2010 toward its mission to increase awareness of Sudden Unexpected Death in Epilepsy (SUDEP).… Read More
Roman was diagnosed with epilepsy as a result of cortical dysplasia at the age of 3.5 months old. Learn more about cortical dysplasia here.… Read More
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.… Read More
DYK? SUDEP is the most common disease-related cause of death in people with epilepsy. By having early conversations and educating patients and families on #SUDEP, we can work with them on the modifiable risk factors (AEDs adherence and adverse events). Read more on the connection between patient education and seizure freedom.… Read More
Leila attended her first PAME conference and found it was a meaningful way to connect with others in the epilepsy community to discuss SUDEP.… Read More
Purple Day 2017 is quickly approaching! Join Emily and get and share ideas to celebrate and support one another on March 26, 2017!… Read More
For a grieving parent who has lost a child, the thoughts of an upcoming graduation day (and the day itself) – there are no words to express the pain.… Read More