Henry’s Fight with Dravet Syndrome
This family discovered after additional seizures and a genetic report that their son, Henry, has Dravet Syndrome. That’s when the entire family’s life changed.… Read More
Shining a spotlight on Dravet Syndrome
In honor of Dravet Syndrome Awareness Month its a great time to highlight this rare epilepsy syndrome that is difficult to diagnose and currently has no cure.… Read More
Epilepsy Blog Relay: Practicing gratitude during difficult times
Jenny takes a moment to practice gratitude despite her daughter’s illness during a particularly difficult time. … Read More
Epilepsy Blog Relay: Knowledge is power when it comes to complex epilepsy
If my child hadn’t been diagnosed with epilepsy, I’m not sure if I would know how to help during a seizure. Knowledge is power when it comes to first aid.… Read More
Epilepsy Blog Relay: Coach gets honest about her epilepsy diagnosis
Despite fear and shame from stigma, this metabolic coach is ready to go public about her epilepsy diagnosis. Read how she found the strength to share her story.… Read More
Epilepsy Blog Relay: Choosing hope despite brain tumor related epilepsy
Amber shares her story of brain surgery and brain tumor related epilepsy. She shares her struggle to find hope and create a life despite her challenges.… Read More
Epilepsy Blog Relay: Is there more than one type of seizure?
People will often ask if there is more than one type of seizure. The answer is yes and each one is unique (you know, like snowflakes…) which is annoying because it makes them that much more difficult to treat.… Read More
Epilepsy Blog Relay: Ken’s Epilepsy Journey
With a traumatic childhood and multiple disabilities, Ken still fights for a better life and to help those around him.… Read More