If you are newly diagnosed or just now looking into connecting with others living with epilepsy, we may not have met. I’m Jessica K. Smith, founder and CEO of Living Well With Epilepsy and I was diagnosed with epilepsy after having several tonic clonic (grand mal) seizures the summer between seventh and … Read More
Jordan is 16 years old and a junior in high school and she’s had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy.
Chantal has been battling epilepsy for 19 years with the help of VNS. She shares a recent letter to her epilepsy.
Karen on brain surgery for epilepsy: My life was going well, epilepsy didn’t stop me doing anything and I thought why take the chance?
After 38 years of secrecy, Alison is now shedding light on epilepsy by sharing information and being open about her condition.
Sometimes Epilepsy can limit the activities we can do. I prefer to challenge those limitations. On a recent skydive I pushed those limitations to the edge.
With a traumatic childhood and multiple disabilities, Ken still fights for a better life and to help those around him.
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
