Epilepsy Blog Relay: November is Epilepsy Awareness Month

If you are newly diagnosed or just now looking into connecting with others living with epilepsy, we may not have met. I’m Jessica K. Smith, founder and CEO of Living Well With Epilepsy and I was diagnosed with epilepsy after having several tonic clonic (grand mal) seizures the summer between seventh and … Read More

Naomi shares Ethan’s story of ARX, a rare genetic disorder

Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More

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