Epilepsy Blog Relay: Chantal writes a letter to epilepsy
Chantal has been battling epilepsy for 19 years with the help of VNS. She shares a recent letter to her epilepsy.
Epilepsy Blog Relay: On life changing decisions and brain surgery
Karen on brain surgery for epilepsy: My life was going well, epilepsy didn’t stop me doing anything and I thought why take the chance?
Epilepsy Blog Relay: Shedding light on my epilepsy
After 38 years of secrecy, Alison is now shedding light on epilepsy by sharing information and being open about her condition.
Epilepsy Blog Relay™: They Say You Can’t Skydive
Sometimes Epilepsy can limit the activities we can do. I prefer to challenge those limitations. On a recent skydive I pushed those limitations to the edge.
Epilepsy Blog Relay: Ken’s Epilepsy Journey
With a traumatic childhood and multiple disabilities, Ken still fights for a better life and to help those around him.
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Life with epilepsy in high school
Jordan is 16 years old and a junior in high school and she’s had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy.
When a Husband Becomes Epilepsy Caregiver
My husband, Pete, and I met before my diagnosis. But, when I was diagnosed with Intractable Seizures, Pete became my life-line.