Gina’s Story: Navigating Temporal Lobe Epilepsy (TLE) from childhood to adulthood
Gina was born with temporal lobe epilepsy (TLE). As a child, the doctors tried everything, but her seizures got worse. Now as an adult she’s thriving!… Read More
Tamu’s Journey with Myoclonic and Tonic Clonic Epilepsy
Tamu was diagnosed with epilepsy at 14. She experienced myoclonic seizures for a several years prior to this diagnosis, and had her first tonic clonic seizure in the summer of 2014… Read More
Danielle on living with epilepsy and cerebral palsy
I’m Danielle and I wanted to share a little about my experience living with epilepsy and cerebral palsy as well as some info on epilepsy and CP.… Read More
Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.… Read More
Is it a seizure or a dream?
You know that dream where you realize you are naked or nearly naked in a public place… the one where you are barefoot walking down a long hallway in a large hotel with no idea why you are there? Here’s the thing, it happened to me and it was a seizure.… Read More
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
On CDKL5: A story of a hard to recognize illness in kids
According to Randi, “When our daughter first had a seizure it was subtle, quick, and questionable.” Today, she shares a story of hard to recognize seizures.… Read More
Absence Seizures Won’t Keep Andrea from Becoming a Full-Time Musician
Andrea has learned to cope with epilepsy and not let it get in the way of her aspirations to be a full-time musician. In fact, the group has recently released a beautiful piano cover of Boston’s “More Than A Feeling.”… Read More