Henry’s Fight with Dravet Syndrome
This family discovered after additional seizures and a genetic report that their son, Henry, has Dravet Syndrome. That’s when the entire family’s life changed.… Read More
Shining a spotlight on Dravet Syndrome
In honor of Dravet Syndrome Awareness Month its a great time to highlight this rare epilepsy syndrome that is difficult to diagnose and currently has no cure.… Read More
How 3 seizure triggers can guide your New Year’s Resolutions
As we head into the new year I wanted to share some tips on how your seizure triggers can help guide your New Year’s Resolutions.… Read More
Shannon’s Story: Building a Strong Support System While Living With Epilepsy
Living with epilepsy is a journey full of unknowns. For Shannon, a father from Louisiana, those unknowns brought fear, loss of independence, and emotional challenges. But through resilience, advocacy, and support, he’s found hope and a new path forward.… Read More
Finding Strength on the “Road to Reduction”
Living with an epilepsy diagnosis means facing a road to reduction of seizures that’s rarely straight or smooth.… Read More
Strength and Resilience: Kailey and Alan’s Journey with Epilepsy
Kailey and her father Alan’s journey with epilepsy has been one of perseverance and hope, marked by years of searching for the right treatment.… Read More
National Epilepsy Awareness Month: Why Advocacy Matters
November is National Epilepsy Awareness Month—a time to amplify the voices of the 3.4 million Americans living with epilepsy. Advocacy is crucial, helping to dispel myths and foster understanding. … Read More
How to Find a Neurologist for Epilepsy
When faced with the problem of how to find a neurologist for epilepsy, the challenge can feel daunting. So, I thought I’d share my process.… Read More