Cassie’s Story: Living with Juvenile Myoclonic Epilepsy
The journey since my diagnosis of Juvenile Myoclonic Epilepsy has made life precious in a way not everybody gets to experience.
2014 Epilepsy Funding update: We’re not there yet
It’s time for the annual epilepsy funding update. Each year I take a look at the funding going toward Epilepsy research and compare it to funding toward other disease states.
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind.
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.
Top Discoveries in Epilepsy in 2013
The end of the year is a great time for “Top” and “Best of ” lists. There’s one for everything including the top apps, top movies, top songs, top photos, and top blogs. I thought it was time to have a Top Discoveries in Epilepsy list. This was a particularly busy year … Read More
Epilepsy and AIDS: too much in common
This year marks the 20th anniversary of the movie Philadelphia, which was a turning point in the AIDS movement. In 1993, people were dying as a result of HIV and AIDS related causes in great numbers. Those infected were living with such severe stigma that people were afraid to tell loved ones, … Read More
Anonymous Story: It’s the not knowing that scares me
One minute I am hitting the snooze button, the next I am seizing in the shower. What just happened???
Following a Ketogenic Diet Through the Holidays
Guest Post By Robyn Blackford, RD, LDN, the ketogenic dietitian at Ann & Robert H. Lurie Children’s Hospital of Chicago, IL While some parents allow their children the freedom to gorge on holiday meals and treats, some do not have that luxury. Children following the Ketogenic Diet (KD) for the treatment of … Read More