Kathleen is chronicling her pregnancy and epilepsy on a blog titled Partially Complex. She has taken a moment to give us a sneak peek into her world. My name is Kathleen. When I was a toddler, I was diagnosed with complex partial seizures. I recently found out that they were caused by … Read More
JD submitted this story of how juvenile onset myoclonic epilepsy has nearly killed him several times over. JD’s Story When I was 14 (1985) I began having bizarre, frightening experiences. In the mornings, while in the bathroom, I would suddenly find myself falling to the ground without any memory of how I … Read More
A guest post by Virginia Cunningham Every parent needs to do their part to make sure their children have high self-esteem, and this is particularly important for children who have issues that can easily affect their self-esteem, like epilepsy. Children diagnosed with epilepsy later in life may need extra encouragement, since they … Read More
Michael Z.’s story may sound familiar to many of you. I know it did to me. He has experienced many of the same things I have, from being diagnosed in his late teens, to “busting himself up” during a seizure, to having trouble with side effects. Read his story and think of … Read More
Several of you have submitted stories your personal experience with epilepsy stigma. Thank you to those of you who have submitted your stories so far. Keep them coming! Campaign Update Just a quick update on our goal of $500. To date we have raised $11. I know we can do better and … Read More
A talented young artist by the name of Ashley Shaffer created “Hope” the beautiful artwork you see here. Ashley has shared her art as part of our Epilepsy Stigma Awareness Month. Creating Hope Ashley was inspired to create this beautiful multi-media piece titled, “Hope” (2013) and has dedicated the piece to inspire … Read More
Living Well With Epilepsy is dedicating the month of June to Epilepsy Stigma Awareness. Your overwhelming responses on Facebook and Twitter have prompted us to dedicate a full month to raising awareness on epilepsy related stigma. Epilepsy Stigma Awareness Many of you responded that you feel isolated and angry. Yet there are … Read More
We have been talking about words on Facebook this week. More specifically, what is that one word that you would use to describe how having epilepsy makes you feel. I was feeling a few words this week and none of them were of the positive variety. Mainly because I found out another … Read More