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Epilepsy Blog Relay™: Announcing Our Lead Bloggers

The next Epilepsy Blog Relay™ will kick off on November 1 and run through November 30 in recognition of Epilepsy Awareness Month. Each week will have a special focus and I am pleased to announce the lead bloggers for the November 2015 Epilepsy Blog Relay™:

Maureen Knorr, "Traveling with Epilepsy"

Week 1: Epilepsy in Everyday Life

Lead Blogger: Maureen Knorr, columnist on Living Well With Epilepsy.

Maureen’s column, Traveling with Epilepsy is a sometimes fun, sometimes scary, authentic look at what worldwide travel is really like when you live with epilepsy. Maureen Knorr has opened her suitcase to share her experiences with us. From having seizures in foreign countries to begging pharmacists that don’t speak English for medication, you will join her on her wonderfully interesting journey around the globe. Maureen will send us one of her postcards from her travels.

 

Picture_1Week 2: Epilepsy Genetics: Awareness Matters

Lead Blogger: Ingo Helbig, MD, Child Neurology resident, epilepsy genetics researcher member of the European EuroEPINOMICS consortium and co-founder of Beyond the Ion Channel blog.

Dr. Helbig went to medical school in Heidelberg and Mannheim, Germany, and Lexington, Kentucky, USA. He trained at the Epilepsy Research Centre, Australia, and was Assistant Professor at the Department of Neuropediatics, Kiel, Germany, and co-project leader of EuroEPINOMICS-RES. In 2014, he became a member of the ILAE Genetics Commission and transferred to the Division of Neurology at the Children’s Hospital of Philadelphia. Dr. Helbig will kick off Week 2 of the EPILEPSY BLOG RELAY and will cover epilepsy genetics in an accessible manner.

 

App imageWeek 3: Tech and Innovation in Epilepsy

Lead Blogger: Leslie Jamison, Executive Vice President and Managing Director, Self Care Catalysts, creators of Epilepsy Health Storylines.

Epilepsy Health Storylines is an app designed for people living with epilepsy with feedback from people living with epilepsy. The app makes it easier than ever to record your symptoms, seizure activity, moods, medication, and more to help you manage your epilepsy. Choose what you want to track and view it all on “My Storylines”. Leslie will share the latest features in the Epilepsy Health Storylines mobile app including connections with wearables.

 

12088417_743736459065096_2679844801254425244_nWeek 4: Creativity and Epilepsy

Lead Blogger: Neil Creque Williams, David’s Reverie Director.
“David’s Reverie” is a drama about a jazz musician struggling to prevent his epilepsy diagnosis from derailing his emerging career. The film has debuted at festivals around the country. Neil, who lives with epilepsy himself, will blog about the film and the process of bringing this topic to the big screen.

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Our full schedule of November Bloggers will be announced. If you missed the chance to participate this month you can always sign up for our next relay which will take place in March 2016 in honor of Purple Day. To sign up for March, visit the Epilepsy Blog Relay page.

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