In this episode, What the EF podcast chats with the queen of epilepsy advocacy, Tiffany Kairos, and ask the questions that can’t be answered in a doc’s office. Like…what does a marriage look like when epilepsy enters after the wedding day? Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible … Read More
What the EF podcast kicks off Seizen 3 with Jennifer Reyes on her strategies for the awkward convos at work about seizures or needing accommodations (which are legally required but hard to ask for). Grab a pen because you’ll want to write these tips down! Available on: YouTube, Spotify, Apple, Google Podcasts, … Read More
A while back I started a new job as therapist. Having completed graduate school, I was so happy to be working in my field. Despite my excitement, my new job brought challenges. One of those challenges included management of my seizures. I developed new triggers and had to rework my daily routine … Read More
Reflecting on my life with epilepsy, I remember the medications and how they made me feel, the hospital stays, and the many, many doctor appointments. This Mother’s Day, it’s time for a special thanks to my mom who was there through it all. Looking back on the early days When I … Read More
Recently, someone asked me to talk to a small group. I wanted to choose a story that is inspiring, something that would relate to these young adults, and something that would stick with them as they started a new journey. I couldn’t help but wonder: is epilepsy my only story? Is this how people identify me…as the girl with epilepsy who ended up doing well in life, despite doctors telling me I may not?
In 2006 I was diagnosed with Epilepsy. At the time I was confused; we all were. I have written quite a bit about my general experience but basically, I grew to adapt to my seizures and new lifestyle and I just got on with my life. I was nearly 11 and I … Read More