Epilepsy Blog Relay™: Sonya’s Story of CDKL5
Day 27 of the Epilepsy Blog Relay™: Randi writes the blog, Sonya’s Story. Her site is aimed at raising awareness of CDKL5.… Read More
Epilepsy Blog Relay™: David on raising a child with refractory epilepsy
David’s Story: My son’s epilepsy has changed our lives completely, but it has also made me a better father, husband, and hopefully a better human being.… Read More
Epilepsy Blog Relay™: Soo on the Importance of Caregivers
From Soo: Caregivers are the unsung heroes in the fight to gain seizure freedom and help us living with epilepsy achieve a fulfilling life.… Read More
Leila’s Ideas: Remembering 7th Grade Stigma
Growing up with Epilepsy means growing up with stigma. In one of my earliest memories of stigma, I learned a valuable lesson.… Read More
Paula’s Story: Sage advice from a mom with epilepsy
I was born in 1952, and back then, it was still illegal for a woman with epilepsy to get married. When I was young, all I could think about was getting married and becoming a mother.… Read More
Purple Pumpkin Time: Use our Snapguide to help
Halloween is almost here and it’s time to paint your pumpkins purple. The Purple Pumpkin Project was started in 2012 by Ron LaMontagne in honor of his 7 year old son. The intention of the project was to get people talking about how purple is the color for epilepsy. This is an … Read More
Purple Pumpkin Project: Did you paint yours?
This year “The Purple Pumpkin Project” was started by Ron LaMontagne and to raise Epilepsy Awareness in honor of his 7 year old son. Check out the pictures The goal of the project was to get people talking about how purple is the color for epilepsy. You will find some great photos … Read More