Epilepsy Blog Relay™: David on raising a child with refractory epilepsy

by Jessica K. Smith | 0

Day 12 of the Epilepsy Blog Relay™

David is the father of a 7-year-old with refractory epilepsy. On his site, http://www.epilepsydad.com, he shares his experiences raising a child with epilepsy. David shares his stories and struggles to let other parents doing the same thing know they are not alone.

From David

My son’s epilepsy has changed the direction of our lives completely. It has challenged us in ways I could never have imagined. But in many ways, it has also made me a better father, a better husband, and hopefully a better human being.

Read David's Post

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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