Epilepsy Blog Relay™: Sonya’s Story of CDKL5

Day 27 of the Epilepsy Blog Relay™

Randi writes the blog, Sonya’s Story. Her site is aimed at raising awareness of CDKL5. CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. It is an orphan disorder, however more children are being diagnosed as awareness of CDKL5 spreads.

From Randi

Sonya is one of those babies that people refer to as a “beautiful baby”.  She has been special from the start.  She was wanted very much by her parents to add to their already crazy house of three active, silly siblings ranging from 3 to 6 years old.