Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.… Read More
Epilepsy Blog Relay: New epilepsy diagnosis after seven years
After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She’s now a year seizure free!… Read More
Epilepsy Blog Relay: Developing a creative life while managing epilepsy
Caroline has found that managing her epilepsy has allowed her to be true to herself and focus on the creative work she is passionate about.… Read More
Epilepsy Blog Relay: A soon to be graduate searches for hope
Amanda’s passion has always been to be a writer, and more specifically a journalist. She shares her adventures and stressors when dealing with her epilepsy as this soon to be graduate searches for hope.… Read More
Epilepsy Blog Relay: Coach gets honest about her epilepsy diagnosis
Despite fear and shame from stigma, this metabolic coach is ready to go public about her epilepsy diagnosis. Read how she found the strength to share her story.… Read More
Epilepsy Blog Relay: A seizure while driving made her hopeful
If Epilepsy has taught me anything, it’s that changing my goals is not failing. I had an absence seizure while driving on the freeway. I am more hopeful because my best friend Emily loves me despite the accident.… Read More
Epilepsy Blog Relay: Help from an epilepsy support group
Early on, Soo’s family would not use the word epilepsy in their home. Now, she is an advocate and makes the most of her local epilepsy support group.… Read More
Epilepsy Blog Relay: Choosing hope despite brain tumor related epilepsy
Amber shares her story of brain surgery and brain tumor related epilepsy. She shares her struggle to find hope and create a life despite her challenges.… Read More