Heidi’s Story: Mom recalls experience with Benign Rolandic Epilepsy
Heidi Strawser, of heidi-strawser.com, submitted her family’s experience with Benign Rolandic Epilepsy to Living Well With Epilepsy.… Read More
Brian’s Story: Accepting and Living with Seizures
About 4 years ago I had to accept and learn how to live with seizures. I’m 29 years old and I experience a headache/migraine and a sense of déjà vu that will at times progress into a seizure.… Read More
Emily’s Story: Managing intractable epilepsy with RNS
Emily is a normal, optimistic, 21 year-old college student. The only thing holding her back is uncontrolled seizures. Now with the help of the RNS System she has a fighting chance at her dreams.… Read More
Stephen’s Story: Chef, Runner and Survivor
I have been seizure free for 14 months and feel that my epilepsy is not behind me but I should enjoy being seizure-free. … Read More
Roxanne’s Story: Epilepsy will not have a hold on me
When I was in my 20’s I had 19 tonic clonic seizures in 1 hour. I wound up in a coma for two weeks and had to relearn to talk. This was not the first time I stared death in the face. This is my story.… Read More
Tim’s Story: All we have is now
I have learned through my own research that it can be tough to find examples of other people living with conditions similar to your own. When there are so many different things that can cause epilepsy, it can be overwhelming to weed through the information that doesn’t apply. … Read More
A Mother’s Day Story: On Being a Mom with Epilepsy
My life is the same as any other Mom. I wake up in the morning to my kids in my bed snuggled in next to me. I wouldn’t have it any other way. The difference in my case, however, is that heavy stress and lack of sleep are seizure triggers for me. … Read More
Dan’s Story: Running with seizures and not even know it
Knee tendinitis, ankles that sprain easily … most marathon runners are nagged by a particular body part that is prone to injury. My nag is my head. I have epilepsy that, for whatever reason, tends to be provoked by running. I’ll be in the middle of a run, cruising along, feeling great, and – bam! – suddenly have a seizure. Bummer when you’re trying to set a personal record.… Read More