Epilepsy stories from around the world.
I am so happy Monica Weldon, CEO and Founder of Bridge the Gap: Syngap Education and Research Foundation, has time in her busy schedule to chat with the Living Well With Epilepsy community! If you have not met Monica she is fantastic. This woman is a force to be reckoned with–she is … Read More
Now that everyone is hunkered down at home we’re trying out connecting via Instagram Live. (You are at home, right? If not please go home.) When? Every weekday at 12pm PT / 3pm ET / 8pm GMT you will find our founder, Jessica Smith on Instagram @livingwellwithepilepsy. Who? We’ve pulled together a … Read More
I have uncontrolled epilepsy and a trigger for me is intense exercise. This has caused frustration, especially now that I am a mom, but I never let it stop me from exercising.… Read More
The topic for this blog was hopes and dreams for the next decade, which is a really scary prospect when you have a medical condition which isn’t stable. This is particularly relevant in this age of Coronavirus and the increasing number of cases of COVID-19.… Read More
This post is part of the Epilepsy Blog Relay™. Kenny’s Story One thing that you should never say to someone with epilepsy is, “You’ll be okay, I’m sure!” Only recently, has this been getting on my nerves. I have to go in to get another EEG. I have aged out of pediatrics and they want … Read More
This post is part of the Epilepsy Blog Relay™. Lauren’s story I’m 36 now and had my first seizure when I was 23 in my sleep. Why? Who knows. There’s still no clear answer about anything. VNS and RNS I have the VNS and the RNS and the seizures still overpower both of these gadgets. … Read More
I was diagnosed with epilepsy in 2013, at the age of 24. I have juvenile myoclonic epilepsy and experience tonic clonic seizures.… Read More
As a parent of two young adults with epilepsy, Carole understands the challenges that come with being a caregiver for teens with epilepsy.… Read More