Real Talk on Epilepsy: A Love Letter from My Brain
Alisa Jones shares a little real talk in a humorous note from her brain on living and coping with epilepsy.… Read More
Living With Lennox-Gastaut Syndrome (LGS): Appreciating Every Moment Together
Rachel shares the story of her family’s efforts to find quality time despite challenges of LGS Epilepsy.… Read More
On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).… Read More
On being resilient when it all seems to be too much
Amanda encourages readers to remember we are resilient, as we manage the pandemic, seasonal changes and a chronic condition.… Read More
Epilepsy in Kenyan Villages and why community matters
Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month.… Read More
Alison shares her experience with a 16 day stereo-EEG stay
Alison shares her journey from to neurocognitive testing to her stay in an Epilepsy Monitoring Unit (EMU) for a 16-Day stereo-EEG(sEEG).… Read More
Raising epilepsy awareness in Uganda
This year has been so difficult for everyone, but for people living with Epilepsy in Uganda the situation has become unimaginable. Gideon Ronie is doing something about it to support what he refers to as the Epilepsy Awareness Uganda family.… Read More
Meet the boy behind the ketogenic diet charity, Matthew’s Friends
Emma first found out about the Ketogenic Diet when Matthew was about 2 years old. But it wasn’t until he was 7 that he entered the Ketogenic Diet Clinical trial at Great Ormond Street Hospital.… Read More