Living With Lennox-Gastaut Syndrome (LGS): Appreciating Every Moment Together
Rachel shares the story of her family’s efforts to find quality time despite challenges of LGS Epilepsy.… Read More
COVID-19 Vaccine and Epilepsy
Living Well With Epilepsy readers are concerned about the COVID-19 vaccine and epilepsy so we’ve put together answers to some FAQs.… Read More
On being resilient when it all seems to be too much
Amanda encourages readers to remember we are resilient, as we manage the pandemic, seasonal changes and a chronic condition.… Read More
Epilepsy in Kenyan Villages and why community matters
Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month.… Read More
Alison shares her experience with a 16 day stereo-EEG stay
Alison shares her journey from to neurocognitive testing to her stay in an Epilepsy Monitoring Unit (EMU) for a 16-Day stereo-EEG(sEEG).… Read More
Raising epilepsy awareness in Uganda
This year has been so difficult for everyone, but for people living with Epilepsy in Uganda the situation has become unimaginable. Gideon Ronie is doing something about it to support what he refers to as the Epilepsy Awareness Uganda family.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More
My Journey with RNS Surgery: Hope for Seizure Freedom
Living with epilepsy is a challenge and finding the right treatment can be difficult. Soo shares her experience of trying medication, VNS, and RNS to treat her epilepsy.… Read More