Tamu’s Journey with Myoclonic and Tonic Clonic Epilepsy
Tamu was diagnosed with epilepsy at 14. She experienced myoclonic seizures for a several years prior to this diagnosis, and had her first tonic clonic seizure in the summer of 2014… Read More
Danielle on living with epilepsy and cerebral palsy
I’m Danielle and I wanted to share a little about my experience living with epilepsy and cerebral palsy as well as some info on epilepsy and CP.… Read More
Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.… Read More
A Lifetime with epilepsy and a little help from VNS Therapy
Betty Gail’s Story My journey with epilepsy began at the very young age of 6 months old. I contracted meningitis, and needed brain surgery to remove fluid that had built up on my brain. Then at about the age of nine, the seizures started. My doctors always assumed that they came from … Read More
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Clair and daughter Riley give tips on epilepsy first aid
Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don’t miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with kids.… Read More
4 Common Epilepsy Side Effects and Tips on How to Deal with Them
Rachel on epilepsy side effects I thought I might cover a few specific epilepsy side effects that I have suffered and how I have learned to cope. I have to state here, this is how I have dealt with these side effects, and my solutions may not work for you. Also, some … Read More
On CDKL5: A story of a hard to recognize illness in kids
According to Randi, “When our daughter first had a seizure it was subtle, quick, and questionable.” Today, she shares a story of hard to recognize seizures.… Read More