My Journey with RNS Surgery: Hope for Seizure Freedom
Living with epilepsy is a challenge and finding the right treatment can be difficult. Soo shares her experience of trying medication, VNS, and RNS to treat her epilepsy.… Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Epilepsy Blog Relay: Focal Seizures with Todd’s Paralysis
This post is part of the Epilepsy Blog Relay™. Stephanie’s Story I was first diagnosed with epilepsy almost one year ago at age 49. I quite literally thought I was having a stroke so I went to the Emergency Room. After the ER visit I was referred to a neurologist for follow up. In the … Read More
Dose mapping and Breakthrough Seizures, What is The Link?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.… Read More
Epilepsy Blog Relay: Reasons for Working with Your Epilepsy Specialist
Regardless of who you’re working with to manage your epilepsy, open and honest communication with your healthcare team is a priority.… Read More
Epilepsy Blog Relay: Improving Adherence Requires a Team Approach
Medication “adherence is a crucial part of the journey toward seizure freedom, but for many people with epilepsy, taking their medications on schedule can be very difficult,” said Lucretia Long, APRN-CNP, Ohio State University Wexner Medical Center… Read More
Epilepsy Blog Relay: Leonieke lives with a thick fog until she gets VNS in Belgium
This post is part of the Epilepsy Blog Relay™. Leonieke’s Story When I was 9 my dream of joining the navy was crushed. I was told that I’d probably never be able to drive. I was also told if I wanted to have kids I’d need to consult my neuro at least 1 year before. … Read More
Epilepsy Blog Relay: The reality of seizure rescue medications for adults
Alice’s seizures often occur in clusters. She’s struggled to find information on other adult’s experiences with rescue medications. So she has shared her own experience here.… Read More