Edward shares his experience with epilepsy and assistance dogs
Edward has been fighting a battle with epilepsy for over thirty years. But life changed for the better thanks to his assistance dog “Zern”, a Labrador Retriever.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More
Finding real support in the online epilepsy community
Hayley has shared her experience with online epilepsy support communities to help those who are newly diagnosed with epilepsy. … Read More
My Journey with RNS Surgery: Hope for Seizure Freedom
Living with epilepsy is a challenge and finding the right treatment can be difficult. Soo shares her experience of trying medication, VNS, and RNS to treat her epilepsy.… Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Telemedicine visits with your doctor during a pandemic
A global pandemic has forced hospitals to send providers and patients home for quarantines. Will telemedicine be a solution to help care for the chronically ill?… Read More
Dose mapping and Breakthrough Seizures, What is The Link?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.… Read More
Epilepsy Blog Relay: Reasons for Working with Your Epilepsy Specialist
Regardless of who you’re working with to manage your epilepsy, open and honest communication with your healthcare team is a priority.… Read More