When hope returns to a life with epilepsy
A little bit of hope has returned and grows every week, every month, like a light at the end of a long, dark tunnel as I continue parenting with epilepsy.… Read More
Emily’s Perspective: Newly diagnosed with epilepsy or epileptic seizures?
Are you new to Epilepsy? Have you had a recent diagnosis of epileptic seizures in your family? Maybe I can help ease the anxiety with this column.… Read More
Absence Seizures Won’t Keep Andrea from Becoming a Full-Time Musician
Andrea has learned to cope with epilepsy and not let it get in the way of her aspirations to be a full-time musician. In fact, the group has recently released a beautiful piano cover of Boston’s “More Than A Feeling.”… Read More
8 ways to support families affected by severe epilepsy
Mary Anne shares 8 tips for supporting families caring for a child affected by severe epilepsy. She gives a little insight into her own experience.… Read More
On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).… Read More
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More
Finding real support in the online epilepsy community
Hayley has shared her experience with online epilepsy support communities to help those who are newly diagnosed with epilepsy. … Read More