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Epilepsy Blog Relay: November is Epilepsy Awareness Month

If you are newly diagnosed or just now looking into connecting with others living with epilepsy, we may not have met. I’m Jessica K. Smith, founder and CEO of Living Well With Epilepsy and I was diagnosed with epilepsy after having several tonic clonic (grand mal) seizures the summer between seventh and eighth grade (about 12 years old).

I started Living Well With Epilepsy back in 2009 and have been working to make a space for people with epilepsy to be heard ever since. I wanted to share a few things with you while I have a second.

November is Epilepsy Awareness Month

In case you are new to this community, let me say welcome! I hope you find lots of relevant and informative stories this month that make you feel seen and heard. This month as you post stories you are encouraged to use the hashtag #livingwellwithepilepsy.

Epilepsy Blog Relay All Month Long

At Living Well With Epilepsy, we take this opportunity to showcase stories of people living with and impacting those in the community from all over the world. Each day throughout the month you will find something new. I hope you will stop by and check it out!

And a special thank you to our generous sponsor who makes the Epilepsy Blog Relay possible, SK Life Science, Inc.

SUBMIT YOUR STORY

If you have not submitted a story here’s a link:

Submit Your Story

Kicking off the month at Epilepsy Awareness Day at DisneyLand

Thanks to the gracious hosts of Epilepsy Awareness Day at DisneyLand, Brad and Candy Levy, Living Well With Epilepsy will have a booth on the expo floor featuring buttons, a raffle and a teeny selfie station. If you plan to attend, we encourage you to stop by our booth!

See you there.

 

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Jessica K. Smith Founder and CEO; Executive Director
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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