Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Living Well With Epilepsy is gearing up for our next Epilepsy Blog Relay™ which will run throughout November 2020. HOW IT WORKS There are a few ways to participate:1) BLOGGER: If you have your own blog – Participate as a blogger by posting the full story on your site and on Living … Read More
Recently, someone asked me to talk to a small group. I wanted to choose a story that is inspiring, something that would relate to these young adults, and something that would stick with them as they started a new journey. I couldn’t help but wonder: is epilepsy my only story? Is this how people identify me…as the girl with epilepsy who ended up doing well in life, despite doctors telling me I may not?