My Journey with RNS Surgery: Hope for Seizure Freedom
Living with epilepsy is a challenge and finding the right treatment can be difficult. Soo shares her experience of trying medication, VNS, and RNS to treat her epilepsy.… Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Dravet Syndrome Foundation Spain announces call for Innovative Research Projects in Advanced Therapies
Thank you to our media partner Dravet Syndrome Foundation Spain. They have shared their call for research projects in both english and spanish.… Read More
Jessica Smith, Founder of Living Well With Epilepsy, shares her epilepsy journey
Jessica Keenan Smith, Founder of Living Well With Epilepsy shares her epilepsy journey with fellow epilepsy advocate Derra Howard, Founder of Saving Grace Epilepsy Foundation.… Read More
Sleep and Epilepsy: Listening to your body clock will help your seizures
Dr. Sameh Morkous explains how improving sleep can help with seizure control and in turn controlling seizures will likewise improve sleep.… Read More
Does healthy lifestyle and wellness have an impact on epilepsy?
Vinay shared that his epilepsy diagnosis was driving him into depression. But when his lifestyle and wellness improved thanks to indoor cycling and endurance sports he found it improved his body and mind.… Read More
Much needed rest for epilepsy caregivers
Rachel, a caregiver to 4 children including one son living with Lennox Gastaut Syndrome (LGS), got a much needed break through A Mother’s Rest.… Read More
My COVID-19 Victory Garden has become my best stress relief
Some of you may be aware that I’ve become a little obsessed with gardening this year. So I figured since I just had my birthday I should celebrate by writing about whatever I want… Okay well, maybe at 48 I should get over myself. But I do want to share a little … Read More