Epilepsy in Kenyan Villages and why community matters
Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month.… Read More
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails.… Read More
Alison shares her experience with a 16 day stereo-EEG stay
Alison shares her journey from to neurocognitive testing to her stay in an Epilepsy Monitoring Unit (EMU) for a 16-Day stereo-EEG(sEEG).… Read More
Raising epilepsy awareness in Uganda
This year has been so difficult for everyone, but for people living with Epilepsy in Uganda the situation has become unimaginable. Gideon Ronie is doing something about it to support what he refers to as the Epilepsy Awareness Uganda family.… Read More
Meet the boy behind the ketogenic diet charity, Matthew’s Friends
Emma first found out about the Ketogenic Diet when Matthew was about 2 years old. But it wasn’t until he was 7 that he entered the Ketogenic Diet Clinical trial at Great Ormond Street Hospital.… Read More
Important Topics to Discuss at Your Next Medical Appointment
Have you ever left your doctor’s appointment and realized that you forgot to ask some important questions? For people living with epilepsy, speaking up is key to creating a true partnership with your neurologist or epileptologist to help achieve your personal and health goals. However, many people still struggle to have real, open conversations about their seizures. The Seize the Truth About Epilepsy Perceptions (STEP) Survey* revealed just how often disconnects can occur between doctors, caregivers and people with epilepsy – and why this needs to change.… Read More
Edward shares his experience with epilepsy and assistance dogs
Edward has been fighting a battle with epilepsy for over thirty years. But life changed for the better thanks to his assistance dog “Zern”, a Labrador Retriever.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More