This Week in Epilepsy: Blog Relay Week 3

Epilepsy Stigma

We are now in week three of the #EpilepsyBlogRelay. We have had a few requests from additional sites to join in the relay. If you are interested in participating with a post on epilepsy stigma here’s how you can join:

Add the following to the beginning of your post:
This post is part of the Epilepsy Stigma Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts that inspire you!

Add the following to the end of your post:
Be sure to check out the full schedule of bloggers at http://www.livingwellwithepilepsy.com for more on Epilepsy Stigma.

Then send me the link when it is up. I will add it to the “This Week in Epilepsy” post. This month we are using it as a way to recap of all the bloggers who posted on stigma.

What is the blog relay?

For those of you who may be new to the #EpilepsyBlogRelay, here’s a little background. Throughout the month of June, epilepsy bloggers and organizations from #Philly to #Cameroon are writing about #stigma on their own sites. Here’s a recap in case you missed any of this week’s posts. You can also check out Week 1 and Week 2.

Day 15

Epilepsy Talk | The Stigma of Epilepsy

My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference … Read More(this is an older post but it is wonderful)

Day 16

[Per]Suit of Anthropology | When Work/Life Balance isn’t a balance – it is a necessity

Last summer the internet was a buzz with Anne-Marie Slaughter’s article “Why Women Still Can’t Have it All.” In her piece, she talked about the role of women … Read More

Day 17

Amanda Fillipone | Managing sports and battling epilepsy

How to manage sports & battling Epilepsy at the same time. [Included is] a link to my story where I was interviewed, had a photo shoot for, & much more … Read More

Day 18

Changing Focus: Epilepsy Edition | Beyond the Stigmas

Since seizures had a name and epilepsy was a known diagnosis, stigmas were attached. Society often turns the other way when they see someone having a seizure … Read More

Day 19

Cycling for Epilepsy | My leg of the Blog Relay

June 19 is my birthday and to all well wishers and supporters I’d like to thank you for your support over the last 12 months. My recent cycle through the AustraliAn Alps raised the profile of Epilepsy … Read More

Day 20

Girls with Nerve | Living with Epilepsy Stigma

Epilepsy stigma has been around as long as the condition itself. I’ve even found examples of epilepsy stigma in the Bible, where people with epilepsy are described as being possessed by demons, unclean, or sinners. This thinking about epilepsy lasted up until the late 18th century.We are far from that time now … Read More

Day 21

SUDEP Aware | How stigma impacts mortality in epilepsy

As we know, there is much more to epilepsy than learning to cope with recurrent seizures. From social isolation, to problems with learning and memory, to a reduction in quality of life – one of the toughest hurdles is dealing with the stigma … Read More

Follow the #EpilepsyBlogRelay

Don’t miss a single post. Follow along with the schedule at https://livingwellwithepilepsy.com/epilepsy-blog-relay-2015

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

See Full Bio