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This Week in Epilepsy: Blog Relay Week 1

Epilepsy Stigma

This week Living Well With Epilepsy launched the first #EpilepsyBlogRelay to shine a spotlight on stigma. Throughout the month of June, epilepsy bloggers and organizations from to are writing about on their own sites.

These sites are linked through a common desire to reduce stigma for those living with epilepsy. Here’s a recap in case you missed any of this week’s posts from the relay.

Day 1

Leila’s Ideas: Stigma in the Workplace

Do I tell my employer about my epilepsy? This post kicks off the Epilepsy Stigma Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts… Read More

Day 2

Epilepsy Education and Support

First of all, What is stigma? Stigma is defined as “a mark of disgrace or infamy, a stain or reproach, as on ones reputation” or , medically “a mental or physical mark that is characteristic of a defect or disease”…Read More

Day 3

Finding Freedom with Epilepsy

At the grand old age of thirty two, I had finally accepted my epilepsy with a genuinely positive attitude.  Quite the contrast from the outlook I entered my teenage and subsequent adult years with… Read More

Day 4

Emily’s Perspective

What one word describes how you feel about epilepsy? Read More

Day 5

Toteman’s World

Ninja Boy on his own: With ToteMan out of town, NinjaBoy took it upon himself to coordinate the forces of good in Garden City. Read More

Day 6

Kat’s Faerie Tales

Once when I was in the middle of having a seizure, I had the paramedics yell at me.  It was terrible.  I couldn’t help myself,…Read More

Day 7

Soo’s Epilepsy Corner

According to Sanjeev Thomas, 80% of the 50 million people with epilepsy in the world live in developing countries.1  It is easy to see why the stereotypes of epilepsy still persist.  And this results in stigma. Read More

Follow the #EpilepsyBlogRelay

Don’t miss a single post. Follow along with the schedule at https://livingwellwithepilepsy.com/epilepsy-blog-relay-2015

 

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Jessica K. Smith Founder and CEO; Executive Director
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.