Epilepsy Blog Relay: My Grandmother and PCDH19 Epilepsy
Francesca’s Story: I have a type of epilepsy that was inherited from my mother’s mother. My grandmother was born with PCDH19 epilepsy.… Read More
Epilepsy Blog Relay: Colleen takes on cerebral palsy and epilepsy with a smile
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! The beginning After Colleen’s birth and being transferred to a nearby hospital’s NICU, we got the phone call that she had had two very big seizures and would need a blood … Read More
World Autism Day: Perspective Is Everything
In the early days I sometimes came across the statistic that up to one third of individuals with autism will also eventually be diagnosed with epilepsy. I never dismissed it, but I never dwelled on it, either – until it became a reality for us.… Read More
Epilepsy Blog Relay: Susanna writes about how epilepsy has made her more creative
Being diagnosed with epilepsy at the age of three means it has always been a significant part of who I am. A lot of people tell you ‘don’t let your condition define who you are’ but you can’t stop it from doing so. The simple fact is, as human beings, the experiences we have alter the way we develop. And I believe epilepsy has, in more ways than one, driven me to be the creative person I am today. … Read More
Epilepsy Blog Relay: Alison is shedding a little light on epilepsy
Here’s to the caregivers for people with epilepsy! Here’s to those who live with us, take us to the hospital, and love us any which way they can. And here’s to that selfless love. It gets us through all that life has thrown at us.… Read More
Top 10 Epilepsy Stories in 2017
As 2017 comes to a close, I thought I might take a minute to share Living Well With Epilepsy’s top 10 epilepsy stories this year. … Read More
Epilepsy Blog Relay™: A lifetime of epilepsy challenges
Gail’s Story: I’ve had epilepsy for over 45 years. I have grand mals and petit mals. I asked if seizures change over your lifetime and my doctor said “Yes!”… Read More
Epilepsy Blog Relay™: Hadley Jo and Ariel
This post is part of the Epilepsy Blog Relay™, which will run from Nov. 1 to Nov. 30, 2017. Follow along! Hadley Jo’s Story Hadley Jo (4) was diagnosed at age 2 with cryptogenic localization related epilepsy. According to the journal, Epilepsy & Behavior, up to one-third of children with epilepsy are diagnosed with … Read More