Epilepsy Stigma: Why Leila is tackling this obstacle in her own way
Epilepsy stigma is a societal problem. Addressing people one-by-one is helpful, and I hope they teach others what they have just learned.… Read More
Meet Shelby: Connecting on loss from epilepsy
Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story.… Read More
Emily’s Perspective: The effects of epilepsy on the whole body
A diagnosis of epilepsy means that you have recurring seizures. It is important to remember that the effects of epilepsy can be felt throughout the body. … Read More
Running stinks but so does SUDEP
I knew the dog would not be a good running partner, but she was a good excuse to get outside. That turned into more of a run/walk/sniff/stop/bark at other dogs/walk/sniff/run/walk. This was not what I had in mind. … Read More
SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.… Read More
Following a Ketogenic Diet Through the Holidays
Guest Post By Robyn Blackford, RD, LDN, the ketogenic dietitian at Ann & Robert H. Lurie Children’s Hospital of Chicago, IL While some parents allow their children the freedom to gorge on holiday meals and treats, some do not have that luxury. Children following the Ketogenic Diet (KD) for the treatment of … Read More
Holiday recipes for ketogenic kids
The holidays can be a tough time to watch what you eat. Being faced with candies and cookies at every turn can make sticking to a diet hard enough, but having to follow a plan as rigorous as the Ketogenic Diet can be practically impossible this time of year. Since there will be parties at … Read More
Interview with founders of new seizure monitor
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More