SUDEP risk factors and my wakeup call
According to Alicia Goldman, MD, PhD, SUDEP could affect 5-18% people with epilepsy. We are looking at a range of 3,250,000 to 11,700,000 deaths worldwide.… Read More
Following a Ketogenic Diet Through the Holidays
Guest Post By Robyn Blackford, RD, LDN, the ketogenic dietitian at Ann & Robert H. Lurie Children’s Hospital of Chicago, IL While some parents allow their children the freedom to gorge on holiday meals and treats, some do not have that luxury. Children following the Ketogenic Diet (KD) for the treatment of … Read More
Holiday recipes for ketogenic kids
The holidays can be a tough time to watch what you eat. Being faced with candies and cookies at every turn can make sticking to a diet hard enough, but having to follow a plan as rigorous as the Ketogenic Diet can be practically impossible this time of year. Since there will be parties at … Read More
Interview with founders of new seizure monitor
I recently interviewed the co-founders of Life Patch, a non-invasive real-time temperature monitoring system for children with febrile seizures. I learned about this potential new seizure monitor now in development, and how it may be a help to people living with epilepsy. It turns out co-founders, Aaron Goldstein and Collin Hill, heard … Read More
Ever had to change medications to reduce side effects?
Ask an Epileptic: “It’s time for me to change medications to reduce the side effects. Have any advice?” DEAR EPILEPTIC: I have a question regarding the transition to a new medication. I have been taking Lamictal for over 10 years and I’m tired of the side effects. Memory loss, inability to focus … Read More
Charles’ Story: Complex Partial and Simple Partial Seizures
Charles’ Story: 50 years of living with complex partial and simple partial seizures At the age of 50 years old, I currently live with complex partial and simple partial seizures. My family relocated from Florida to Ohio when I was 3 years old. That same year, I had an appendectomy whereby medical … Read More
An interview with CURE Grantee, Dr. Hiroki Taniguchi
Dr. Hiroki Taniguchi, CURE grantee and a research group leader with the Max Planck Florida Institute for Neuroscience (MFPI), was recently awarded $100,000 by Citizens United for Research in Epilepsy (CURE) for his efforts to study cellular structures seeking to identify pathways for treatments or cures for epilepsy. Dr. Taniguchi has generously … Read More
Sarah’s Story: Grand Mal Seizures
I was diagnosed with epilepsy at the age of 8 and have coped with it ever since. Initially, my epilepsy was a burden, however I am in the process of accepting what I have. I am also trying to help others do the same. At present, I take a drug called Keppra. … Read More