Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Dose mapping and Breakthrough Seizures, What is The Link?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.… Read More
Epilepsy Blog Relay: Patient-Provider Disconnects In Epilepsy: National Survey Evaluates Perceptions
The “Seize the Truth About Epilepsy Perceptions” (STEP) Survey was conducted online on behalf of SK Life Science, Inc. The results revealed important disconnects that exist between patients, caregivers and healthcare providers (HCPs). … Read More
Epilepsy Blog Relay: Rachel’s EMU visit is the antidote to the social media highlight reel
We live in a society where we only see our friends and families positive highlight reel on social media. But Rachel found her visit to the EMU was the antidote.… Read More
Epilepsy Blog Relay: A Pituitary tumor and seizures leads to a life in search of answers
The doctor asked if I knew I had a pretty good size tumor or Adenoma, on my Pituitary Gland after I woke from seizures that progressed into a diabetic coma.… Read More
Seizures, pregnancy and epilepsy in real life
Jamie shares a story about her experience with seizures, pregnancy and epilepsy. … Read More
Epilepsy Blog Relay: Henry’s Fight with Dravet Syndrome
Henry at about 1 year old, started having seizures again but this time there was no fever. Our lives just changed forever. … Read More
Epilepsy Blog Relay: Disability in the workplace
Rachel helps us understand the Americans with Disabilities Act and how it can help you advocate for yourself in the workplace.… Read More