This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along!
My name is Michael I live in Long Island, New York and I have had epilepsy ever since I was 13 years old. I had movements prior to me having a seizure in school, but no one believed me. I also have hydrocephalus. That is a condition in which there is too much water built up in the brain. My doctor believes that is the reason why I have epilepsy. Nevertheless, I have had around 4 ‘s words’ (seizures) throughout the whole time I have had it.
I am 20 years old now and take medications; that has kept it under control. Now, notice how I wrote ‘s word,’ I find it hard to even say. The word makes me feel bad every time I hear it. I would rather people just say I had a brain storm. I still live with epilepsy and I do get depressed at times. Sometimes I get tired easily and I have a bit of a learning problem due to my epilepsy. All through high school, I did feel like I was labeled as the kid with epilepsy. It’s hard to find people who support me. No one that I know of really has epilepsy. That is why I posted this blog, in order to get support and maybe help others. I hope others can read this and we can continue to help and raise awareness of epilepsy.
If you are feeling alone, here are a few more articles that might help:
- Life with epilepsy in high school
- Coping with depression, could it be a side effect?
- 4 great reasons to exercise
- Tips for dealing with an epilepsy diagnosis
If you were just diagnosed with epilepsy:
- We’ve got articles on getting used to your new normal
- Are you worried about how epilepsy is going to affect your family, your loved ones or just generally complicate your dating scene? We have lots of stories that might help.
- If you are stressed about dealing with epilepsy at work, don’t worry we’ve got you covered
- Feeling like you are alone? Guess what, we have some pretty honest posts to show you are not the only one dealing with seizures and side effects.
- Do you have an EEG coming up and you are not sure what to expect? This one is great for kids or anyone who has never had an EEG!
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