On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).
Tips on how to track seizures
Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey.
Three opportunities for researchers interested in developing neurotherapeutics
For the researcher interested in developing Neurotherapeutics who is looking for ways to network with experts in academia, industry, advocacy, and government here are three great opportunities.
The journey to practicing gratitude during difficult times
Recently Colleen was sick and hadn’t eaten in days. Jenny shares her experience with practicing gratitude during this difficult time.
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails.
Meet the boy behind the ketogenic diet charity, Matthew’s Friends
Emma first found out about the Ketogenic Diet when Matthew was about 2 years old. But it wasn’t until he was 7 that he entered the Ketogenic Diet Clinical trial at Great Ormond Street Hospital.
Edward shares his experience with epilepsy and assistance dogs
Edward has been fighting a battle with epilepsy for over thirty years. But life changed for the better thanks to his assistance dog “Zern”, a Labrador Retriever.
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.