Finding real support in the online epilepsy community
Hayley has shared her experience with online epilepsy support communities to help those who are newly diagnosed with epilepsy. … Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Dose mapping and Breakthrough Seizures, What is The Link?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.… Read More
Epilepsy Blog Relay: Reasons for Working with Your Epilepsy Specialist
Regardless of who you’re working with to manage your epilepsy, open and honest communication with your healthcare team is a priority.… Read More
Epilepsy Blog Relay: Patient-Provider Disconnects In Epilepsy: National Survey Evaluates Perceptions
The “Seize the Truth About Epilepsy Perceptions” (STEP) Survey was conducted online on behalf of SK Life Science, Inc. The results revealed important disconnects that exist between patients, caregivers and healthcare providers (HCPs). … Read More
Epilepsy Blog Relay: Rachel’s EMU visit is the antidote to the social media highlight reel
We live in a society where we only see our friends and families positive highlight reel on social media. But Rachel found her visit to the EMU was the antidote.… Read More
Epilepsy Blog Relay: A Pituitary tumor and seizures leads to a life in search of answers
The doctor asked if I knew I had a pretty good size tumor or Adenoma, on my Pituitary Gland after I woke from seizures that progressed into a diabetic coma.… Read More
SUDEP Awareness and Medication Adherence – Is There a Connection?
DYK? SUDEP is the most common disease-related cause of death in people with epilepsy. By having early conversations and educating patients and families on #SUDEP, we can work with them on the modifiable risk factors (AEDs adherence and adverse events). Read more on the connection between patient education and seizure freedom.… Read More