Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.… Read More
Clair and daughter Riley give tips on epilepsy first aid
Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don’t miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with kids.… Read More
5 tips for dealing with an epilepsy diagnosis
Many of us will face a devastating diagnosis and some will even face life with a chronic illness, like Epilepsy. Here are a few tips to help.… Read More
On explaining epilepsy to peers
Being an individual living with epilepsy, the one question I get a lot is, “What is epilepsy?” The scientific definition is a chronic neurologic disorder with many possible causes including illness, brain damage, or abnormal brain development.… Read More
Emily’s Perspective: Newly diagnosed with epilepsy or epileptic seizures?
Are you new to Epilepsy? Have you had a recent diagnosis of epileptic seizures in your family? Maybe I can help ease the anxiety with this column.… Read More
On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).… Read More
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More