Epilepsy Blog Relay: One family pushing the boundaries of Lennox-Gastaut Syndrome
Lili was diagnosed with Lennox-Gastaut syndrome (LGS), a rare and severe form of epilepsy, but therapeutic horseback riding was an activity she could enjoy.… Read More
Epilepsy Blog Relay: Alison’s post on stigma
Alison writes about stigma and epilepsy on her blog Shed Light on Epilepsy. In her recent post she encourages us to think about our epilepsy in a new way.… Read More
Epilepsy Blog Relay: Emily on Smart Monitoring her epilepsy and seizure alert systems
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More
Epilepsy Blog Relay: Kat and living with seizures
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Kat’s Story Kathryn writes the blog, Kat’s Temporal Lobe Diaries. Kat writes, “Unfortunately I have seizures. It’s simply a part of my life, as much as every other thing.” She goes … Read More
Epilepsy Blog Relay: The constant fear of SUDEP
This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I … Read More
Epilepsy Blog Relay™: Using Tech to Improve life with Epilepsy
Having both epilepsy and cerebral palsy, Colleen’s life began with so much uncertainty. As she’s gotten older, tech has played a key role in our life.… Read More
Epilepsy Blog Relay™: Creative Solutions to Seizure Triggers
Many people have asked me what my seizure triggers are. So, I thought I would tell you both my triggers and what tools I use to combat them. … Read More
Tell the world: #IAMSUDEPAWARE
Tell the world about SUDEP Many people are unaware they are at risk of SUDEP or Sudden Unexpected Death in Epilepsy. That’s why SUDEP Aware, Living Well With Epilepsy and Lundbeck have joined forces to shine a spotlight on SUDEP Awareness Day, October 23. In fact, each year an estimated 1 in … Read More