The Americans with Disabilities Act and Epilepsy
Learn more about how the Americans with Disabilities or ADA, helped remove barriers for people with disabilities, and for people with epilepsy in particular.… Read More
After the loss: SUDEP from a family perspective
After the loss: Tonya always thought, because she was older and had more seizures, SUDEP would steal her away first. Instead, the family lost Jesy to SUDEP in 2012.… Read More
Epilepsy Blog Relay: Michael takes a positive approach to an epilepsy diagnosis
After years of mental and physical trauma from seizures, Michael discovered what he wanted to acomplish as a person, and as someone diagnosed with epilepsy.… Read More
Epilepsy Blog Relay: Leila on PAME and SUDEP
Leila attended her first PAME conference and found it was a meaningful way to connect with others in the epilepsy community to discuss SUDEP.… Read More
Epilepsy Blog Relay: Jewel takes on the realities of living with epilepsy
Like many people diagnosed later in life, Jewel had little knowledge of what Epilepsy was, and what life would be like living with it.… Read More
LIVINGWELLCHAT on CBD, Medical Marijuana and Epilepsy: June 30 at 7pm ET
On 6/30 at 7pm ET, we will host our next #LIVINGWELLCHAT. We will hear from the community on what the new marijuana-based epilepsy drug could mean for families affected by LGS and Dravet Syndrome.… Read More
Epilepsy Blog Relay: One family pushing the boundaries of Lennox-Gastaut Syndrome
Lili was diagnosed with Lennox-Gastaut syndrome (LGS), a rare and severe form of epilepsy, but therapeutic horseback riding was an activity she could enjoy.… Read More
Epilepsy Blog Relay: The constant fear of SUDEP
This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I … Read More