This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along!
Jewel’s Story
Jewel writes the blog,
Live out Loud. It is a lifestyle resource for the modern woman and mom. A space committed to building a community which inspires individuals to live healthier lives and conquer parenthood while
increasing awareness of epilepsy around the world.
She writes, “In 2008, my life drastically changed. I was diagnosed with a seizure disorder. Over the past several years, I have endured several series of EEG’s, EKG’s and MRI’s in an attempt to classify the types of non-epileptic and epileptic seizures I was experiencing. Like many people diagnosed later in life I had little knowledge of what
Epilepsy was and an even limited knowledge about what life would be like living with it.”
Today’s post is on family seizure safety.
Excerpt from “A Checklist For Family Seizure Safety”
“After I had my first seizure, I constantly thought about all the possible scenarios that could occur if I had a seizure. My mind raced through the millions of terrifying feelings, all of the questions and possible outcomes that could happen. However, I never thought about what would happen if I were alone with my son during a seizure. Could I ensure my safety and the safety of my son? How could I possibly protect him in such a vulnerable state? Immediately, my mind went into auto drive and I decided to put together a checklist to help my family navigate through the possibility of my son being alone with me during a seizure. Our families are vital in helping manage our seizures so involving them to ensure the safety of everyone is important.”
Don’t miss her latest post!
NEXT UP: Be sure to check out the next post by Jennifer at https://timetobuildcastles.wordpress.com/.
TWITTER CHAT: Save the date for the #LivingWellChat on June 30 at 7PM ET.
Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. Thank you to our generous sponsors and partners!
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Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
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