Epilepsy Blog Relay: Kat and living with seizures

This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along!

Kat’s Story

Kathryn writes the blog, Kat’s Temporal Lobe Diaries. Kat writes, “Unfortunately I have seizures. It’s simply a part of my life, as much as every other thing.” She goes on to write, “I live in the state of motherhood, just like I live in my tree lined neighborhood. My children keep me sane and drive me crazy.”

Excerpt from Kat’s blog

Kat has participated in the Epilepsy Blog Relay almost for as long as it has been running! Here’s an excerpt from last June’s post:

“I went four whole months of consciousness and normal sleep patterns. Now I am back to square one. Square negative one. My brain had an electrical storm and now I will be soft and squishy for days. Sleep will descend like a meteor. My windows are shattered from the impact.

I don’t want to admit how quickly doing so much better can go to smashed face into the corner of the sink and bleeding broken on the floor. Fours month wasn’t forever, but I was starting to think it was. Maybe I could go six months without seizure. I would make a sign and take a selfie like all my Epi Friends online. Ten seconds later and all that shit has been destroyed. At least my husband was in the bathroom with me. This time I woke up on the floor confused and tired, but unharmed. There is always that at least. My tongue doesn’t even hurt. I didn’t wake up in the hospital naked.”

Don’t miss her latest post!

NEXT UP: Be sure to check out the next post by Jewel at liveoutloud4epilepsy.org.

TWITTER CHAT: Save the date for the #LivingWellChat on June 30 at 7PM ET.

Living Well With Epilepsy’s Epilepsy Blog Relay™ is an epilepsy awareness movement to designed to maximize collaboration and eliminate stigma. Thank you to our generous sponsors and partners!

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Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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